Message to people

Story: Mr. Yoshichika Tobikawa (Male Man/ in his 40s at the time of the disaster/ SMA [spinal muscular atrophy])

Do you have anything that you want tell people about daily things?

A friend of mine who participates in activities of Nyokkiri-dan is doing welfare trainings at elementary schools. Children nowadays have much more opportunities to relate to welfare than when we were kids. They don’t get too curious about wheelchairs for example. I think that adults have more prejudice. Kids are simple, so they stare at things that are new to them, and it is normal. I think they are used to seeing persons with disabilities. I’m saying it in a positive sense. I expect that when these kids are grown up, Japan will be really a good country to live in. It is very disappointing to see adults saying to kids something like “Don’t get close to these people.”

 

It is us adults who need to learn more.

I heard that children are learning in their ethics class different things such as how to use wheelchairs or how people feel when they have hemiplegia. We didn’t even see persons with disabilities when I was a child. The environment has changed.

 

Do you have occasions when you go out by yourself?

I go out by myself to stroll around in the neighborhood. When I go for shopping and things like that, I ask someone to drive me there, and then I move around by myself. I went to the prefectural art museum to see exhibitions with friends of Nyokkiri-dan this summer with assistance of professional helpers. It was really fun.

 

I can see that Nyokkiri-dan has become a very important group for you Mr. Tobikawa.

Yes, it has. It is nice to have a channel to consult with the city authorities or to bring your opinion to them. It is also nice to have a forum of exchanging information, and friends you can go to see art exhibitions with. I think people need to have these opportunities. I hope more people overcome their worries and come close to people like me. We are not so special, just that our bodies move less. People’s hesitation to approach makes us difficult to talk to them. You can just be natural. When people ask “Are you ok? Really ok?” with too much willingness to help, it is too heavy for us (laughing). In emergency situations, however, we’d rather like people to come straight to help us. It’s all about balance, I guess.

 

I see. So, we can show that we are willing to assist even with our limited knowledge on disabilities.

In some cases, we are to be blamed for not clearly say what we want people to do. I myself get a bit nervous if I meet a person for the first time. Personal relationship is a sensitive matter even for persons without disabilities, right?

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